Principal Investigator: Alberto Eugenio Tozzi
EU Grant: € 160,500
The Bambino Gesù Paediatric Hospital (OPBG) is a Scientific Institute for Research, Hospitalization and Health Care, Italy’s main paediatric Hospital providing advanced health care for children and performing basic, clinical and translational research activities.
The Hospital is part of the Italian National Healthcare System and is widely recognized as referral centre for all paediatrics specialties at national and international levels. With its 6 Directorates and 11 Departments, covering all aspects of paediatrics care, the Hospital provides a complete range of healthcare services to children.
OPBG has a total permanent staff of 2.500, of which 550 physicians, 45 biologists and pharmacists, involved both in clinical and in research activities. OPBG has a research staff on a non-permanent position of 180. There are also approx. 50 post-graduate trainees (medical and surgical) and over 100 students and interns.
Yearly clinical activities consist of 26.770 inpatient admissions, 76.446-day hospital admissions, 5.400 day surgery treatments and 1.41.517 outpatient visits.
The Hospital’s clinical activities run side by side with its scientific research, aiming at constantly improving and innovating diagnostic and therapeutic procedures. Research activities are organized in “Research Areas”: immunology, onco-haematology, regenerative medicine, genetics and rare diseases, clinical-technological innovations, clinical management models, multifactorial diseases, clinical innovation and trials, management innovations. Each Research Area is coordinated by a senior scientist, and under the supervision and management of the Scientific Director.
Yearly research activities involve approx. 300 research projects, mainly multicentre: 20% of them are coordinated by OPBG. In 2013 OPBG researchers have achieved a total Impact Factor of 1.801.
The high standard level is maintained also by close cooperation with several paediatric Institutions around the world. Post-graduate and post-doctoral clinical and research positions are offered to young investigators each year.
OPBG supplies a wide range of information technology infrastructures in order to give the best care levels to its patients, using mainly HL7 international standard to manage information flows and integrations between different software subsystems and DICOM standard to manage diagnostic images.
OPBG can give to its paediatric patients and their parents the following e-Services through the internet using secure protocol (SSL):
- Online EMR visualization
- Online Medical Report consultation
- Online booking for visits and diagnostic procedures
- Specific online booking for rare disease
- Online payment for medical examinations and diagnostic procedures
- Some forms of telemedicine (i.e. data transfer from home care instruments like spirometers)
The expertise on e-Services and standards described, together with the legal knowledge base of the hospital will be offered in order to complete the project tasks assigned to OPBG.
Relevant EU or national Projects
OPBG is coordinator of FP7 project “MD–Paedigree – Model-Driven European Paediatric Digital Repository”, funded under the VPH area of ICT Theme, and was clinical coordinator in two FP6 and FP7 ICT for Health projects: Health-e-Child (2006-2010) and Sim-e-Child (2010-2012). OPBG participated and is currently involved in several other EU funded projects: a) within FP7: DAPHNE; AGGRESSOTYPE; Fight-HLH; NeoMero; WoRHD; EURO-PADnet; LEUKOTREAT; PERS; GRIP; CELL-PID; EPICE; InTreALL.
ERANET projects: ERANET PRIOMEDCHILD: NEUROGENMRI; ERANET E-RARE: OSTEOPETR (coordinator), EUROBFNS (coordinator), EUROSPA, PodoNet; EuroGeBeta; EuroCGD; within Public Health (DG SANCO): EUROFEVER, EURONEOSTAT I EURONEOSTAT I; TAG; RD PORTAL 2; ORPHANET EUROPE